grief, loss, love, Uncategorized

Promise

Promise

The pain of losing you
Makes it hard to breath
Makes it hard to sleep
Trying very hard
Not to harden underneath

Just miss my sunshine
That beautiful smile
For those warm hugs & kisses
I’d walk a million mile

Just promise me baby girl
To wait for me
If I can make it through
Wait for me on the other side
Behind those skies of blue

Promise me and I’ll promise you
In my arms you’ll be
Then hand in hand
We’ll fly the skies together
And swim through every sea

We’ll be together once again
And remain…

For all eternity.

haileyobx

Uncategorized

Something good

When I’m feeling lost, broken or just missing my baby girl so much I can’t breathe, I try to remember something good.

Something good like this…

The speech her sister Isabelle wrote a couple days before Hailey’s service:

“Hailey was a special person. She was sweet, funny, nice, and saw the best in everyone. Hailey was the best friend or family member anyone could ever have. We have to hope that God took her away for a good reason. Because maybe something worse could have happened in the future. Hailey had a big heart and no one will forget that. We have to keep her memories alive as long as we live. And one day I promise we will see her again. Hailey & Kayla are and always be my best friends forever.

My family was the best thing that ever happened to me. And they are the loves of my life. And I realize now that instead of fighting and arguing with each other, we have to be loving and caring and cherish every moment that we spent alive. I know that it is going to be hard to go on with our lives but we will have to be strong. Because Hailey is watching over us and she does not want to see us sad because if we do then she will get sad.

And we have to remember that Hailey is a beautiful angel and that she is no longer in pain and that she is having fun. There were so many things she wanted to do in life but now she can do it in heaven. We have to look for signs that she is there. And that Hailey is in a better place now.”

……

Admittedly, much of that day, like most days after, are sort of a blur to me.

But the image of my nine year old daughter reading this speech out loud, in front of all our loved ones, on a bright sunny day, will never leave me. An image… that will gladly replace others just a couple weeks prior.

Not many spoke that day, which is okay. Which made what she did & said even more amazing. I couldn’t of been prouder of our little girl, standing there showing such amazing courage, love & strength.

Heartbreaking & beautiful, I will always remember her words. I will always be proud. The resilience & love they continue to show still amazes me. It teaches & guides me. It gets me through each day. The lesson of a lifetime…

It’s my something good.

something good

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We Didn’t Know

Our daughter Hailey passed away less than 24 hours after being diagnosed with Type One Diabetes, while traveling overseas on a family vacation. In her case, she wasn’t misdiagnosed or undiagnosed. She was diagnosed too late

Why?

Because none of us knew.

We didn’t know that her increased thirst just a couple weeks before our trip, was one of the most common signs of this disease. She had just joined a running club at school & we thought that was the reason she was drinking more water.

We didn’t know that weight loss was another symptom. We thought the running at school & the exercising at home was the cause for her looking slimmer. We didn’t worry because Hailey was always slim & in the recent months she had a few growth spurts. We knew she was growing up to be tall, just like her Daddy.

We had no idea….that instead our baby girl’s body was being consumed by this monster of a disease called Type One Diabetes.

We knew of the diabetes that everyone else knows about; Type 2. But we would of never thought. After all, Type 2 is always related to being overweight & Hailey was always the slimmest of her sisters.

……..

We didn’t know that the plane ride & trip would make her sicker. We didn’t know that by the time we landed in La Paz, Bolivia- a city over 11,000 feet; she was already showing symptoms of DKA- diabetic ketoacidosis.

We thought it was altitude sickness, which is very common in La Paz. We were aware of that going in. When she vomited once & complained of a tummy & a headache– we told her that it was going to be ok; that she’d be better in a couple of days, once her body adjusted to the altitude.

But she never adjusted….

Our precious, beautiful, innocent baby girl was in a coma just two days after. Then she passed away from complications of DKA & cerebral edema on the third day of our trip.

Just like that, she was gone.

………

No parent or other human being should ever have to endure this kind of pain.

No one should ever have to live through this kind of nightmare. No one should live with: If only we knew, if only we could turn back time, if only we hadn’t travelled, what if, why, why, why?

I don’t wish it on my worst enemy, which can now only be this disease that took our baby girl. In learning more about it, we have learned one harsh fact. That is:

Even knowing what we know now, we might of lost her anyway.

Why? Because there have been & still are children & adults being either misdiagnosed or not diagnosed at all. Even here, in the U.S.A.

Symptoms are being mistaken for other illness; such as the flu…

Children are dying. Other beautiful children have lost their precious lives after Hailey, because of this terrible disease.

I know this because I’ve met & talked to their parents in person & online. This is not made-up. This is real & it keeps happening & it’s heartbreaking each time.

How many more lives will it take?

………

I lived with guilt many months after losing our baby girl.

I thought how could I have not known? How could I have missed this? Why didn’t I pay better attention?

It’s taken my angel, my other two beautiful daughters, my husband, my family, friends & a higher power to show me that I shouldn’t blame myself. That in fact, there is no one person or thing to blame. Not God, not myself, or doctors, or the world…

The hardest lesson to learn was; we really don’t know what could of happened if it had played out any other way & we can’t change what happened.

We can’t change it for us, but maybe we can change it for someone else.

Maybe we can become a voice for Hailey & in her memory, tell others about Type One Diabetes. We can tell parents, teachers, nurses, doctors, & children themselves…everyone.

We can tell them that this deadly disease exists & it is on the rise & that it should not be overlooked! Not by anyone.

So please share. Please educate. Please test. Don’t overlook T1D.

In memory of Hailey & all others who lost their lives to this disease.

Don’t let it be too late for you or anyone. Don’t guess.

Because…it’s better to know than not to know.

 

hikingmouse
This is Hailey, ready for our hiking adventure just a couple weeks before our trip. She was smiling & full of energy. We would of never guessed she was probably already sick. :*(
Uncategorized

Sister’s Love

Bella wrote this note to her sister just a few hours after Hailey passed away, using my cell phone:

haileyletter

The first time I read it, it broke my heart yet again, into a million little pieces. But I saved it anyway. To this day, it’s still there.

Every now & then I will look at it & remember. Remember the pain & the heartache. But the love too. The sweet words from one sister & best friend to another.

It also encouraged me to start writing letters to Hailey & I have been doing so for over a year now.

How do we stop communicating to our loved ones after death?

We can’t. Just like we can’t stop loving them…

They are always with us, in our thoughts & prayers. Embedded in our hearts & our DNA.

We always remember.

Uncategorized

In the beginning

The Darkest Days

~~~

Dark are the days
Since my sunshine was taken away
Upon my darkest hours
Is when I don’t see a future without her

Wondering what the point is
Of living this life with no bliss

Feeling like faith has betrayed me
Leaving me with only memories
Of what used to be

Dark are the days
Missing the love I knew
Searching for her in everything
That is beautiful, pure & true

Not a day goes by
That I bow my head down & cry
Missing our sweet angel
That now flies through the sky

Even on the darkest days
We go on & put on a show
Pretending everything’s alright
It’s better that no one know

Dark are the days
When we realize with words unspoken
Nothing will bring her back

And our hearts will remain forever broken

broken chain